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土耳其PCOS在线论坛的关切、同伴建议与信息缺口:一项定性网络民族志研究

PCOS discussions on a Turkish online forum: a qualitative netnographic study of concerns, peer advice, and information gaps

PubMed · 生殖内分泌/遗传/保存 · Front Reprod Health · 文献 · 2026-10-16
Aksoy Ö
DOI 10.3389/frph.2026.1978089 · PMID 42964258 · 原文链接 ↗ · Scholar
综合 55.0 模型 55.0 · deepseek/deepseek-flash · 强度 low 未入选(阈值 60.0) 生殖内分泌 卵母细胞与卵泡生物学
新颖 45严谨 55影响 40领域相关 70转化 40

摘要

该定性网络民族志研究分析土耳其公开论坛120条初始帖和708条同伴回复,用反思性主题分析与定性内容分析归纳PCOS患者关切及回复功能。生育、妊娠与母职焦虑最常见(20.0%),其次为治疗/用药不确定性(18.3%);同伴回复以不完整或不确定建议为主(56.2%),生物医学指导或正常化占19.4%。作者认为论坛信息环境混杂,临床人员应主动回应患者线上信息寻求并提供清晰、以人为中心的指导。

原文摘要

INTRODUCTION: Polycystic ovary syndrome (PCOS) is a multidimensional endocrine, metabolic, and reproductive condition, yet little is known about how related concerns and peer advice unfold within Turkish online forums. This study examined initial concerns and associated peer-response patterns in a publicly accessible Turkish forum. METHODS: A qualitative netnographic study was conducted using 120 initial posts and 708 peer responses published between August 2025 and May 2026. Initial posts were analyzed using reflexive thematic analysis and assigned one dominant theme for descriptive frequency analysis. Peer responses were categorized by their dominant communicative function using qualitative content analysis. RESULTS: Fertility, pregnancy, and motherhood anxiety was the most frequent initial concern (n = 24, 20.0%), followed by treatment and medication-related uncertainty (n = 22, 18.3%). Among peer responses, incomplete or uncertain advice predominated (n = 398, 56.2%), followed by biomedical guidance or normalization (n = 137, 19.4%), practical navigation (n = 50, 7.1%), and experiential advice (n = 47, 6.6%). Cross-tabulation demonstrated that incomplete or uncertain advice predominated across most initial concern categories. DISCUSSION: Turkish PCOS forum discussions represent a mixed peer-information environment in which reassurance, experiential knowledge, practical guidance, incomplete advice, non-evidence-based recommendations, and stigmatizing interactions coexist. Healthcare professionals should address patients' online information-seeking and provide clear, person-centered guidance on diagnosis, treatment, fertility, visible symptoms, and healthcare pathways.

推荐理由:可浏览:研究揭示PCOS患者在线上论坛的主要关切及同伴建议质量不足,对临床沟通和患者教育有提示;但属单国定性研究,样本与结论外推有限,对ART实验室和胚胎多组学直接价值较低。

关键词:多囊卵巢综合征 · 在线论坛 · 网络民族志 · 同伴建议 · 患者信息需求

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所属事件:土耳其PCOS在线论坛的关切、同伴建议与信息缺口:一项定性网络民族志研究 热度 0.0 · 0 个来源

条目 #330 · 入库 2026-11-08 11:44 · JSON · Journal Article