阿曼多囊卵巢综合征女性的生育照护体验:一项质性探索
Fertility Care Experiences of Omani Women with Polycystic Ovarian Syndrome: A Qualitative Exploration
摘要
该研究在阿曼马斯喀特两家生育诊所目的性招募20名多囊卵巢综合征(PCOS)合并不孕的女性,采用半结构化访谈与框架分析法,探讨其生育照护体验及医护情感支持情况。受访者平均28岁、平均不孕4年。研究识别出与医护沟通、情感支持供给、生育照护服务体验三大主题;患者普遍反映病因与治疗方案信息不足,沟通障碍包括问诊时间短、语言差异及与男医生互动不适;护士更具共情与文化敏感性但临床角色受限;正式情感支持缺失,并受隐私、污名及专业职责认知等文化因素影响。结论提示阿曼PCOS不孕女性在信息与情感支持方面存在显著未满足需求,需将文化敏感、以患者为中心的心理支持纳入生育服务。
原文摘要
OBJECTIVES: This study aimed to explore Omani women's experiences with fertility healthcare for polycystic ovary syndrome (PCOS) and the extent and nature of emotional support they received from healthcare providers (HCPs). METHODS: Twenty Omani women diagnosed with PCOS and infertility were purposively recruited from two fertility clinics in Muscat, Oman. Semi-structured interviews were conducted to elicit the women's perspectives on fertility care and their interactions with HCPs. The interviews were audio-recorded, transcribed verbatim, and analyzed using the framework approach. RESULTS: Participants had a mean age of 28.0 years (range = 19-35) and an average infertility duration of four years (range = 1-12). Three overarching themes were identified: (1) communication with HCPs, (2) provision of emotional support, and (3) experiences with fertility care services. Participants consistently reported receiving inadequate information regarding the causes of infertility and limited explanations of treatment plans. Barriers to effective communication included brief consultation, language differences, and discomfort interacting with male physicians. In contrast, Omani nurses were perceived as more empathetic and culturally attuned, although their clinical roles were restricted mainly to managing patients through appointment and testing schedules. Despite the psychological distress associated with infertility and its treatment, participants reported the absence of formal emotional support during consultations. Some attributed this to cultural sensitivities, such as privacy concerns or the stigma related to fertility in Omani culture, and beliefs that addressing emotional well-being was beyond physicians's professional remit. A lack of continuity of care, perceived provider inexperience, and inadequate facilities seemed to compound patient dissatisfaction further. CONCLUSIONS: Omani women with PCOS and infertility expressed significant unmet needs in the informational and emotional aspects of fertility care. Communication barriers and the lack of integrated psychological support reflect systemic, professional, and sociocultural constraints. These findings underscore the importance of incorporating culturally sensitive, patient-centered emotional support as a standard component of fertility services in Oman.
推荐理由:提供了阿曼PCOS不孕女性在沟通与情感支持缺口方面的文化情境质性证据,对生殖内分泌临床服务改进有参考价值;但样本量小、单国家诊所来源,且不涉及ART实验室或胚胎多组学,证据外推与转化有限,适合浏览。
文献解读
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